LIFE JOURNEYS – Caught by Surprise: A Caregiver’s Story by Kathy Sporre

Caregiver

It was March of 1985 when I was violently jerked into the world of caregiving. It wasn’t a delicate, deliberate, planned process at all. It was jarring, understood (an unspoken, unsigned contract in our family), and overwhelming.

I was pregnant and three weeks overdue in my last pregnancy when I received word that my father had committed suicide. He had retired early, and was caring for my grandparents and ailing mother. Retirement wasn’t working out as he had planned, and he tried to re-enter the workforce. Met by a wall of ageism for the older-than-average worker trying to enter the workforce in a new field, he became discouraged and began a downward spiral which led to his depression and death.

I cried so hard upon hearing the news that I went into labor and delivered my daughter a day later. Upon leaving the hospital, I entered into a new world that I had no time to plan for. I had gone into the hospital with two people dependent on me (my two-year old and four-year old sons) and came out with six dependents, including my new little girl. It wasn’t their fault. It just was.

Fortunately, I was working at the time as a full-time mother at home. That at least gave me the freedom I needed to meet everyone’s needs during the course of each day. Had I been working outside the home, it would have been a completely different story I’m telling right now.

Between visits to doctor appointments, hospitals, and personal cares for seven (including myself); grocery shopping, managing finances and housekeeping chores for three households, I had no time for “a real”  job. This must have been before the caregiving support networks were formed because I never heard of them at the time, and didn’t even self-identify as a caregiver. I identified with the fact that I was a mother, a daughter and granddaughter – that’s it.

I was also a wife, and that ended in 1989. It wasn’t a casualty of caregiving. It was actually more the result of beginning to take care of myself. Lots of things changed in 1989. They had to. I “hit bottom,” and had nowhere to go but up. I began working outside the home again in 1991, and am still with the same employer today.

My grandfather passed away at home after a courageous battle with cancer. Grandma spent a little over a month in a nursing home before she succumbed to cancer. My mother died in her home a few years ago. In between, my children all grew up and left the nest. Now it’s just me and my wonderful new husband who has been by my side for the last 17 years. He was sent to me as an angel in disguise in the midst of my single caregiving days.

I know my story isn’t unique. It’s mostly daughters who care for their aging family members when they need help. It seems to be a rite of passage; an honor, despite its difficulties, that is bestowed upon some of us as we are refined by age.™

Kathy Sporre’s website is http://refinedbyage.com/ . In her blogs she talks about the Seven Dimensions of Wellness.

 

 

 

 

 


LIFE JOURNEYS – A Tapestry of Life by Robbi Nester

 

Ying YangI have sometimes heard a person’s life described as a tapestry. If this were truly accurate, that life would be of a piece, an intricately embroidered fabric whose threads all formed a single image or pattern. But life is far less neat and predictable than this. There are many loose ends and false starts. Most lives would most certainly not resolve into a neat single pattern. This is the case of my father, Mish Kellman, a complicated man who, while he was gentle and kind, full of life and compassion, was at other times violent and contradictory, morbid and preoccupied with death.

Part of this changeability may be chalked up to his neurology. My father was bipolar, and had Tourette Syndrome and Obsessive Compulsive Disorder (OCD). Lifetime movies aside, mental illness is truly not romantic or interesting. It is boring and tedious, difficult to deal with, and wreaks havoc not only on the life of the person with the illness, but on his whole family. This was certainly the case of my father.

He was born in 1916; a week or so after his 40 year old father died of a heart attack in the middle of the street while at work in the family’s trucking business.  I know little of his father’s family except that they were comparatively wealthy and disowned my grandmother and her children. What I know for sure about my father begins with what he was able to remember himself.

After this he told me my grandmother took in sewing, but it wasn’t enough to bring in food for the children. My father, small and slight, tried to help by squeezing under the pushcarts parked along the street to steal fruits and vegetables for the family’s dinner. He and the other urchins of that hungry time would gather coal from the passing trains to heat the house.

As a schoolboy, in an unforgiving Philadelphia school system, he was punished for his inability to remain still and the terrible shooting pains behind his knees. He told me when his legs would press against the hard wood of the chair he would cry out. His teachers interpreted this as deliberate bad behavior so he was finally expelled as incorrigible.

At that time Tourette’s and multiple other neurological disorders were frequently misunderstood. He ended up in a hospital because of his tics, which were mistaken for some sort of communicative disease. No one came to visit him for two months in the hospital. In my lifetime, his difficulties continued, though his Tourette tics and twitches had virtually disappeared.

Prone to attacks of rage that made him difficult to be around, my father nonetheless managed to be funny, imaginative, kind and generous much of the time. Though not formally educated he was intellectually curious, and fiercely concerned about justice. Most of the time, he loved life above all things.

I remember one incident from my childhood that illustrates this. The children of my neighborhood loved my father, but were also afraid of him. One never really knew who would answer the door—the bipolar monster who would lash out violently for no reason, or the kind, funny man who played like a child. One day, my dad, an electrician, told me to assemble the children on the block for a treat. A long line of impatient kids stretched out the door and down the cellar stairs to watch my dad electrocuting hotdogs. He had rigged up a device, attached to the light fixture, impaling hotdogs on sterilized nails. They would hiss explosively, then burst open in a sizzling spurt. We used up three packs of hotdogs that day, and as many buns.

As a young adult, my father left home early and joined the Air Force, where he learned to pilot planes. Because of his volatile temper, he never formally became a pilot, but he was a flight mechanic, and ended up as part of a crew that flew 35 or more missions over Germany in WWII.        

After the war, he went to Israel, smuggling guns into the country, along with his brothers, and helped to found one of the first kibbutzim, a communal farm devoted to a strictly socialist ethic. There he met my mother, who had come from South Africa with her sisters, and married her in a ceremony that joined a number of couples at once.

Despite his devotion to the idea of the nascent state of Israel, he was dubious about the kibbutz system, which relegated him to picking bananas, while the schoolteacher attempted to take care of the electrical system. Everything had to be strictly equal; it would have been viewed as elitism to allow the electrician to care for the electrical system, the teacher to run the schools. His choice words on the subject got him expelled from the kibbutz, as he had been from so many other institutions. It was just as well: he had tried to learn Hebrew, but was never able to, despite his efforts.

He returned home to Philadelphia with my mother where he worked for 35 years before retiring and caring for my mother who had dementia.    

Because of his bluntness and uncontrollable temper, much of his life was very difficult and unhappy. Sometimes he lost jobs because he would speak out or act inappropriately. He was violent and often depressed and morbid, a difficult husband and father despite his love for us. But every Friday, he put a silver dollar in a piggybank for me. This later funded my college tuition because some of those dollars were worth thousands each. He would bring me a different book every Friday evening. This was his way of celebrating the Sabbath. During the good times, he would wake me at 5am to take the dog for a walk. He would point out the colors of the morning sky; nourish in me an appetite for stories and teaching me to be kind and compassionate.

At 89, the second phase of his life began when he had a stroke. Things had deteriorated in the house in Philadelphia. Despite my pleas, he had allowed my mother’s hoarding and dementia to overwhelm them both. I could not get him to have the house cleaned out and sold. He was convinced he could not afford to come to California to start a new life. He had thousands of dollars buried in the house, amid bags of trash, and had invested wisely in stocks over the years. I did not learn of this until I took up the reins of his finances.

After the stroke, when I was able to assume control of my parents’ affairs, I had my father assessed by a psychiatrist, who was able to come up with a cocktail that made life livable for the first time. I sold the house before the market crashed, and made use of the money my father had saved to make them a better life, the kind he had always dreamed of, in California.

According to dad, these last five years of my father’s life were the happiest he had spent in his entire life. For the first time, he was put on medication for his disorders. He became a completely changed person, a much happier one, and much easier to be around. He blossomed. With the care of doctors and the caretakers who tended to him, he became the kind person he always was, deep down. He was able to nurture a love for gardening, Sudoku puzzles, good food, and most of all, conversation. He was a completely changed person, a much happier one, and much easier to be around. Dad would call me every day and say, “It’s a beautiful day,” even if it was pouring, because he was just so happy to be alive. I will miss him and feel privileged to have been his daughter.

 


What Are You Writing Right Now? Blog Hop

If you’re an author, it’s quite common to be asked at a reading what’s your next project. You always need to be working on something, or you might as well hang up your pen! The question, “What are you writing right now?” inspired this blog hop, where a number of writers from all over the U.S. are writing on “My Next Big Thing,” answering the same 10 questions you see here.

I’m honored to be tagged by Julia Tagliere, author of Widow Woman (published Sept 12, 2012) as an e-book, but soon to be available in print format. It’s a poignant book that will change your thoughts about love and life.   Please check it out!

 

Now on to the Blog Hop!


What is the title of your book?
  Titles are tricky. They are the first glance and the lasting romance. Affectionately I now call it “Lila Mae” which will certainly change to something more gripping.

Picasso-Woman-with-Raised-Arms-300x233Where did the idea come from for the book?  I was inspired to write about a young woman that worked for me. Her life seemed  to constantly be in chaos. She changed her life course more often than the wind. This is, however, a book of fiction so the rivilege of  an author is to take her where I want her to go.

What genre does your book fall under? It is fiction, but more like fiction taken from real life experiences. I think many writers get their inspiration from real life – then there are the science fiction writers!

Lila MaeWhat actors would you choose to play the part of your characters in a movie rendition?  Lindsay Lohan seems to be just crazy enough to play the part although she doesn’t fit my physical image. I am not familiar with all the new young actors so I can’t name anyone. I see a tall, thin young woman who is flighty and lost in her life. I would need a series of male characters that are a little rough around the edges as well as one nice, young black man.

What is the one-sentence synopsis of your book? Life does not allow you to go back and redo your past, but the future can be anything you make it. Choose wisely.

Will your book be self-published or represented by an agency? Self-published. I’m looking at doing it myself on Create Space which I have not delved into yet or creating it in e-book format only. E-books are very popular, but it’s hard to market them because you don’t have a physical copy.


How long did it take you to write the first draft of the manuscript
?  A year to form the general idea and work on developing the character. I am now putting the pieces together and developing the form and sub-plots.

What other books would you compare this story to within your genre? Any book about a young woman stepping into adulthood, but not really prepared to accept the responsibilities that go along with it. A common theme, but this book takes the character in a different direction.


Who or what inspired you to write this book?
I began by using bits and pieces of the life of the main character for assignments in my writing class. Then I realized I
wanted to put a whole picture together in book format.
What else about the book might pique the reader’s interest? Although I’ve never met another woman quite like the main character I believe young adult women would enGirl Readingjoy reading about her life. Readers often like to read about others who are similar to them, but make stupid mistakes they can relate to or are happy to have never made.

When you find yourself feeling lazy or ‘blocked’, how do you force yourself to get past it? I just start “free writing” and go wherever my mind wanders. This often leads to a path I can follow. I also belong to a writer’s group where I need to present each month. It forces me to have something completed. The discipline of daily routine of writing is a habit that serves me well.

What is the most important advice you can give other writers? Get feedback from friends and writing groups about your story, character development, plot, etc. along the way. It will help you focus. I can never emphasize enough the importance of editing as you are completing your work. Edit, edit, edit.

Are there differences between male and female authors? Men are often more inclined to write so they can make a living as an author. They consider writing a business. Although there are many successful women writers they often begin writing out of their love of writing and creating without concern for making a ton of money. This, of course, is not true in all cases.

 

NEXT! I’ve tagged 2 fabulous authors to follow me in the Blog Hop!

 

Celayne Jones has been writing for as long as she can remember.  Her first finished work, at the tender age of six, was a newspaper she created while Celayne Jonesvacationing at her    Nana’s house.  Many years later, she shares her home with two dogs and several cats who generously provide her with blogging material at celaynejones.com “dominated by the dogs; confounded by the cats” .  When not chronicling animal antics, she writes short fiction (with human characters), essays, and even some poetry.  She is currently at work on a novel, The River of Time, which she describes as “historical fiction meets past-life regression therapy session”.

You can find her blog on http://celaynejones.com/. Look for Celayne’s post on Friday, March 29, 2013.

 

Kerry Hartjen, originally from Los Angeles, CA, is a retired magician/clown/playwright who has recently returned to pursuing the life of a writer. He has had poetry, short stories and nonfiKerry Hartjenction published in “RipRap”, “The Journal of the San Juan Islands”, and more recently at www.helium.com . Two of his one-act plays were produced at The Uprising Theatre in Long Beach, CA and his full-length musical comedy “Little Red Riding Hood, The Musical… Sort Of” was commissioned by and produced at The New Wharf Theater in Monterey, CA. He is a graduate of The Hollywood Scriptwriting Institute and was a script reader for the Monterey Film Commission Screenwriting festival for three years. Kerry currently lives on a small island midway between Seattle, WA, Vancouver, B.C., and Victoria, B.C. with his wife and their cat, Max.

 You can find his blog at: www.raviolithewriter.com . Look for Kerry’s post on Thursday, April 4th.

  

When Norma Gail Thurston Holtman, a lifelong desert rat from New Mexico, visited the Scottish Highlands, it was love at first sight. The two combine in her debut novel, Land oNorma Gail Thurston Holtmanf My Dreams, a contemporary inspirational romance, fiction that refreshes the spirit.

She served in a leadership capacity in Bible Study Fellowship International for eight years, and has led a women’s Bible study in her local church for the last ten years. Her devotions and poetry have been published at Christiandevotions.us and The Secret Place. Her devotional website has a growing readership in 40 countries. It recently went over 10,000 readers in the US, and shows steady growth in Russia and Germany.

Norma is a member of American Christian Fiction Writers and FaithWriters, and an avid attendee at the Colorado Christian Writer’s Conference. She belongs to Goodreads groups for Blessed Sellers, Fans of Christian Romance, Christian Readers and Writers that Blog, and Scotland Reading Challenge 2013. Norma has been married for 37 years to the love her life. She and her husband make their home in the mountains outside Albuquerque, and have two adult children.  

You can find her blog on http://normagail-2mefromhim.blogspot.com. Look for Norma’s post on Friday, April 19, 2013.

Please visit these blog sites.


LIFE JOURNEYS – Surviving and Thriving by Louise Mathewson

Wild, choppy seas on the gulf today! I just had to walk over to see the big waves, what was happening on the shore today, take pictures to remind me of what big waves look like.

I survived a hurricane of grief after a traumatic brain injury ten years ago, where I was quite close to life on the ‘other side’. It’s not quite that bad in the gulf today, no hurricane. But a storm is heading our way. I confess, it’s a little scary to see six foot waves come racing for shore.

It was early in my writing career, I had been published in Cup of Comfort, Volume 1, a few pieces online, and I’d written one poem! Then a car-totaling accident, in which I hit my head and severely injured my brain entered the scene. Life changed in a minute! I could no longer, eat, breathe, move or talk; in fact, I was deep in a peaceful, coma sleep. I had to have therapies to help my brain find new ways to send messages to my body. However, the emotional part was left alone on the shore.

A couple years after the accident, I found I had nothing much to do that mattered and I sure didn’t have much energy to do anything anyway. I was pretty depressed, sad, swimming in a dark pool of grief. I decided to get back to writing, but I couldn’t pick up a pen or the paper to go with it. I think I was terrified of the well of emotions that took up residence and yearned for release. I thought I would lose what little self I had at that time, I thought I would get washed over by the waves of sadness that were bigger than I saw on the gulf today.

One day I happened to see an ad on a writing newsletter I got and emailed Linda Leedy Schneider, a writer and poet herself. I told her I had a brain injury, couldn’t get myself to write and asked if she could help? Well, long story short, she gave me an exercise to write from that lit my inner spark! I used the sentence stem, “I reclaim” and found I got a high. At a time when I felt so powerless, so without any value to anyone, even myself, I began to feel important.

Putting words on paper became my art and my passion! I used description to create images, and pictures. Metaphors helped me express feelings and thoughts that lived inside my attic. Things I couldn’t really tell others because I looked so normal, just fine to them. They couldn’t see how my brain didn’t work so well anymore, how I struggled to understand things, and they couldn’t see the pain.

After a couple years of working with my writing mentor, one day she said that I had enough poems for a book! I thought she was hallucinating! But I dutifully gathered them and saw that she was right. Then, because I lost my organizational skills in the accident, I got help from my husband and a copywriter/editor. Next, the search for a publisher began. One day, I got a letter back from Peggy Elam at Pearlsong Press asking to see my manuscript. I wondered what was up that she wanted to see it.

Wow!! My book is now published! A Life Interrupted: Living with Brain Injury.

Sometimes I wrote from my own prompts. One day, feeling like no one understood what life with an injured brain is like, I wrote “no one knows” and just kept writing till I got it all out. I still use some of the prompts that are listed on a page in my book. I listed web resources, as well as practitioners in the states that I have lived in too.

I had no intentions of a book, I only wrote to heal myself and now I have a book that is helping others with serious life-changing events to find ways to heal. With that, I continue to be healed and I thrive, despite the waves of life that come in a day’s living.

Louise Mathewson’s book of poems, A Life Interrupted: Living with Brain Injury, can be purchased online at Amazon.com. Her blog is at http://www.louisemathewson.com/apps/blog/. She also speaks to traumatic brain injury groups and others. For more information go to www.WOWSpeakersNetwork.com.


LIFE JOURNEYS – Finding Support

This year I would like to focus on a few of the many people who have demonstrated incredible strength and courage. Each month I will provide an inspiring story or two about people who have overcome obstacles and are flourishing. These are the stories of everyday heroes. I encourage you to contact me if you have a story you wish to share.

Julie Callicutt was only 34 when she was blindsided with her first stroke. Two years later she suffered a second stroke. Surviving a stroke is difficult and often requires years of physical and occupational therapy. Through this experience survivors are forced to learn a hard lesson – patience. Especially with herself.

An important ingredient in recovery is support. Not only is sharing your trials and tribulations with others who have experienced the same trauma important, but the support of family and friends is essential.

At the time Julie had her strokes she was fortunate to have a boyfriend, (now her husband) who was emotionally, physically, mentally, and financial supportive. He drove her to doctor appointments, called on specialists, and helped her through her darkest hours of immeasurable pain, spasms, cognitive decline and communication difficulty.

His family was also a source of emotional and spiritual comfort. Through this ordeal she is grateful for the bonding that occurred with this gracious, giving, honest and loyal family. She truly feels more like a daughter than a daughter-in-law.

Another source of strength for Julie was her older sister who is an occupational therapist. She used her skills to provide techniques that helped strengthen the areas in her body that were weak. Having worked with many stroke victims who had similar pain and paralysis her sister was able to suggest new medicines, therapies and treatments recommended by doctors, nurses and psychiatrists who focused on stroke victims.

Unfortunately, Julie did not feel this same support from family members. Several ignored “the elephant in the room”. They simply did not understand what it was like to have a stroke and that there might be long-term permanent damage, both cognitively and physically. Julie felt hurt and alone and did not understand that sometimes family and friends are not able to deal with the painful truths and will shy away from the facts. Julie’s illness was significant in her life. Even when people care, they still will have significant things going on in their own lives. When they don’t meet our expectations it is rarely intentional. Surrendering over expectations of others may be a life-long process, but if we have high expectations we will consistently find that people will disappoint us. No one is perfect.

Julie was not alone even though the people she had hoped would be there for her were not always available. We need to find strength wherever we can and Julie found it in the cards, letters, and prayers she received often from people she had never met.

Despite not always having the support she needed Julie is now focusing on her communications skills and increasing her memory capacity. She finds writing not only therapeutic, but empowering and inspiring. Prior to her strokes Julie operated the Ferko Therapeutic Group, a company working with children with mild to severe developmental delays including those with autism. You can reach Julie Ferko Callicutt at masterther@hotmail.com or go to her website www.ferkotherapy.com.


NEW BEGINNINGS by Pat Spilseth

Pat is a dear friend and writing inspiration to me. When she wrote this a year ago for her “From Where I Sit” newspaper column I asked if I could use it for my blog. I now share this important message with you.

“And now let us welcome the new year, full of things that have never been.” Rainer Maria Rilke, Austrian poet, 1875-1926.

As I turn the calendar to January, 2013, I wonder what the new year will bring. The past year has been unsettling. Not only have politics, the wars, and the market made people anxious, but many have experienced the loss of friends, jobs, and homes. 2012 began with such hope, but became a year of disarray.

A new year brings hope. Rilke wrote, “We see the brightness of a new page where everything yet can happen.”

In college I began reading Rilke’s “Letters to a Young Poet”. The poet’s words offered comfort when I felt anxious and uncertain, especially when he wrote, “Have patience with everything that remains unsolved in your heart. Try to love the questions themselves, like locked rooms and like books written in a foreign language. Do not now look for the answers. They cannot now be given to you because you could not live them. It is a question of experiencing everything. At present you need to live the question. Perhaps you will gradually without even noticing it, find yourself experiencing the answer, some distant day.”

“And the point is to live everything. Live the questions.”

Several years ago I wrote a column I called “Tempus Fugit” (Time Flies), which I’m going to refer to once again. Rather than living the questions, enjoying life, we anxiously distress ourselves about life’s outcomes. Too often we let time past us by.

January, a time for new beginnings, has many of us writing well-intended resolutions to lead a healthier life and set goals to achieve new aspirations. Our intentions are so good. How often we rush through our days, always anticipating a new morning, a new beginning, a new start in life. Life is an endless cycle of anticipation.

At 3 we can’t wait to get rid of our three wheeler to graduate to a two wheeler. At 4 we can’t wait to be 5 to go to school with the big kids. Then we can’t wait to be part of the top grade in school because all the little kids look up to the oldest kids. At 12 we’re anxious to be 13, a teenager. At 15 we wait for our sixteenth birthday so we can date and drive. At 16 we wait for 17 and 18 to finally get out of high school, leave home, and start college. We’re anxious to be 21, the legal age to drink and vote…to be a real adult.

The days pass too quickly. Unconcerned, we wish precious time away. By the time I hit 30, I began to realize that time wouldn’t go on forever. School was completed; a marriage was made; my life as an adult was in gear. Years of raising children became a blur. I started to notice a few gray hairs and wrinkles on my forehead and around the eyes. I began to balk at time racing indifferently through my precious years. Why didn’t time stand still so I could get a handle on this aging process?

At 40 I began to enjoy each season’s beauty. I was able to enjoy my teenagers, to revel in their growth, their active sports teams, academic progress and to look closely at their friends, especially the questionable characters they sometimes dated. It was exciting to visit colleges across the country, to interview their dates, to dress them in gowns and tuxes for prom. I began to look at their dates as possible marriage partners. The rush through life was in full gear once more.

At 50 I realized time was passing me by. What did I still hope to do with my life? I wanted to see more places, meet new people, taste different foods, paint some canvases, and read more books. Life was no longer so rushed. I finally understand why my mother could sit on her screened porch for hours enjoying the simple pleasures of nature, a friend’s conversation, a cup of coffee and a cookie. Simple pleasures became satisfying.

Age grants us some wisdom. I now take time to appreciate each day’s sunrises and sunsets, revel in life’s ups and know that the down times will pass. It’s enjoyable to take time to relax and think about those years that passed so quickly as well as the possibilities that life still offers to all ages.

Let time stand still for a moment or two. Life’s endless cycle continues. Just be. Enjoy.


Turn Any Setback to a Positive Experience by Valerie Greene

Valerie Greene’s message is especially relevant as we go into the busy holiday season followed by a new year and a new opportunity to turn our life around.

Most people would love to find the mythical genie in a magic lamp. They’d rub the lamp, set the genie free, and instantly get three wishes that could change their life. What would you wish for: Money, success or health? However, you already have the magic genie’s power within. That’s right! The power of the mind can literally change your life and make all your wishes come true.

Realize that everything we say, do or think sends a message to the brain, and the brain works very hard to make our messages come true. So if you focus your mental energy on negative things, then in most cases you’ll get exactly what you envisioned. On the other hand, if you focus your mental energy on positive things, even when a situation looks bleak, you can create a positive outcome.

The old saying if life hands you lemons, make lemonade rings so true in creating your outcome. While most of us often struggle with applying this to our everyday lives, those who go on to achieve great things despite what seem like insurmountable odds have discovered this secret-that you can achieve what you believe is possible. Believing is the key.

It’s also important to understand that sometimes situations are put on our path to direct us to a destiny that we would not have otherwise chosen on our own. So negative situations can turn into blessings. Sometimes it can take years to realize how a situation impacts you, but it can turn into a positive-if you allow it to.

Following are some suggestions for making the most of any situation and turning it into a positive.

Become aware of your thoughts. Because of our busy lifestyles today, many people aren’t aware of the majority of thoughts they think. To get an idea of just how many thoughts pop into your mind within a given minute, take a few moments to just sit in a quiet spot and clear your mind. If you’ve never consciously tried to clear your mind before, you’ll find that it’s not as easy as it sounds. However, with this exercise you will become aware of the messages that stream through your mind. When you’re in solitude without interruptions of traffic, the kids, the television, etc., you can finally hear the internal messages that the outside world distracts you from. Knowing these messages are keys to changing your situation.

Visualize the message you send. Think of your brain as a command center equipped with the most advanced sonar system capable of hearing and feeling the smallest of your thoughts. Every thought you think and word you say becomes like little soldiers set on a mission to fulfill every command, desire, thought or action you initiate. Their job is to successfully carry out the command you set. Therefore, when you catch yourself saying things like, “This is going to be hard,” you are programming your brain to believe that whatever it is will be hard. That message then becomes an image in your mind. Instead, create a positive image in your mind. Rather than visualize something being hard, say, “I will enjoy this new challenge.” The power of your mind’s eye is extraordinary. See it, believe it, and then achieve it.

• Be ready to cancel negative input, whether it’s from you or someone else. Have you ever caught yourself thinking or saying something that you realize is not actually what you wish to create? When this happens, simply tell yourself to cancel that message. Or, if you hear a negative message, in your mind visualize yourself putting up a shield in front of yourself that will protect you from the negativity. Let the negative messages bounce off of you. When you think and perceive yourself as more powerful than the negative situation, you will conquer negativity and create positive outcomes in your life.

Give yourself permission to change your outcome. Often, people become stuck and don’t realize they can change their outcome. Why? Because most of us were simply never taught that we could. What messages are you giving yourself? It’s up to you to change your mind and to want different and better results for yourself. You don’t have to settle for the same results you’ve always had or the same outcomes your family and friends experience. You can change your situation and outcome.
Create Your Future Today

Once you realize that your brain strives to prove you right, you immediately become the master of the messages you hear, think and say, which in turn propels you to create what you believe. Therefore, turning a negative into a positive actually starts with a dream, a belief, planted so deep in your heart and soul that it saturates your mind with endless possibilities. Practice it every day, and you will change your life.

About the Author
At age 31, Valerie Greene was a healthy, athletic and successful business owner until a massive stroke paralyzed the left side of her body and left her unable to speak. Today she is sought out as a national keynote speaker delivering a powerful story of courage, determination and success. Greene is the author of Fire Within: A True Story of Triumph over Tragedy, and the soon to be published, Driven by Fire: Surviving a Massive Stroke. For more information, please e-mail her at valerie@valeriegreene.com.


Little Hand – Big Motivator

She moved a little closer like she was going to tell me a secret. “I love you, Grandma Kate,” speaking ever so softly. I put down my fork and gave her a kiss along with an “Oh, sweetie, grandma loves you too.” There’s something about a grandchild that melts your heart like a chocolate bar in the sun.

Olivia was born in the middle of the worst blizzard Minnesota had ever experienced on Christmas Eve. An infection left her quarantined in the hospital for four days. Since the day she came home from the hospital she has been a joy to the whole family. However, Olivia is more than that just a treasured first grandchild. Housed in that tiny body was the stimulus that made a major impact on my life.

Almost exactly one year before she was born, I collapsed in my bedroom doorway. After being rushed to the hospital, examined and scanned, I was told my spine was damaged and I would be paralyzed from the waist down for the remainder of my life.

My whole world had turned upside down. Not only could I no longer stand at my kitchen counter and make family dinners or go grocery shopping, I could not get out of bed without a lift or go the bathroom on my own.

Months of physical therapy resulted in very little improvement. I accepted my fate. My mobility would always be on wheels. But then a miracle began to form. My daughter and son-in-law announced that they were expecting my first grandchild. I was overjoyed. The first thing I could think of was how much I wanted to be a proper grandmother.

I knew I could wheel an infant, snuggled in a baby sling, around in my wheelchair, but how was I going to change her diaper? I began to work very hard to stand if only long enough to lean against the bed and do a quick change. Though Olivia liked to ride around with me in my power chair, I knew I would need more than that as she got older.

Olivia grew and developed which presented more challenges. She wanted to play and I needed to set her down on the floor and be able to pick her up when she got bored. With months of intense pool therapy followed by land therapy I got stronger. As Olivia scooted around in her walker I laboriously trudged along in an adult-size walker at the rehab center. Olivia got stronger. I got stronger.

A memory imbedded for life was the day Olivia and I walked down the hall together hand in hand; cane in my right hand, my dressing stick in Olivia’s left hand. Grandma Kate and Olivia learned to walk together. She was the motivation for my grueling physical therapy. I needed to do the best I could with what I had.

Today I have another granddaughter, Isabella. She doesn’t know the grandmother on wheels. Not only do I walk and drive, now I have the strength to stand and bend down to pick her up. She is just learning to walk. I stand firmly by her side ready to walk with her.


Are You Trying to “Be” Without Becoming? By Tai Goodwin and Kathi Holmes

There’s a line in a Christian rap song I like that goes, “…no one wants to become, they only want to be.” For most people, our first exposure to someone who has “made it” occurs when they are at the “Be” stage of their career. We celebrate, praise and in some cases idolize them based on the final image they present to the world.

But what about the less glorious phases of that person’s path, the time they spent “becoming.” We don’t often get to see behind the scenes of their early years -the practice they endured, the rejection they encountered, the missteps, disappointments, and the setbacks. We don’t see the time and effort they diligently invested and the habits they worked hard to build over the years.

If we were very honest many of us would admit that we don’t really want that – we want the results. We want to “Be” and we want it now!

Tai wrote this in her Monday Morning Pep Talk email. Tai inspires working people who are looking to launch their own business, but feel they can’t do it while they are still working. When I thought of this message I thought of the many people I have met who became disabled later in life – maybe from an accident or stroke. I hear their stories when I do book presentations and in my twice weekly Courage Center pool exercise.

Once something has changed our life, we immediately want it to be as it was. We often don’t have patience with the progress. We want to “be” better and not have to go through what seems like endless physical therapy exercises or the “becoming” strong again. It’s natural for us to want to return to our former self, but our lack of patience in the process can be more harmful than helpful.

Ralph Marston, author of The Daily Motivator, says “The keys to patience are acceptance and faith. Accept things as they are, and look realistically at the world around you. Have faith in yourself and in the direction you have chosen.”

What do patience, acceptance and faith all have in common? For one thing, they may be difficult to grasp. Patience requires a calmness that does not come naturally in this instant world of ours. I learned (but have not mastered) patience when I was paralyzed and had to motivate around furniture and through doorways in my power wheelchair. If I wasn’t careful, I’d scratch or dent something. I only removed the door frame to my bedroom twice! I needed patience when something dropped on the floor and I had to retrieve my reacher, unfold it, and fish for the item. Then there is the mobility bus. Oh, they were usually on time, but left an hour before and after my appointment. That prompted me to become an avid reader.

Acceptance is the first step in recovery. Addiction specialists agree that acknowledgement is what begins the recovery process. Just because we accept the fact that we are not the same as we were prior to the traumatic event does not mean we will not be trying to regain what we lost. It just means we know where the journey begins.

Faith means a belief or trust in something, someone, or our God, especially without logical proof. When I was recovering I had faith that God would give me what He wanted and I prayed for the strength to accept what he gave me.

No wonder we want to “be” instead of “become.” It requires swallowing some difficult concepts. It’s easy to watch a dancer swing gracefully across the stage. It looks easy. We think we could do it, but we neglect to think of all the hard training it took to get there.

It is my hope that we will all be blessed with faith, determination, acceptance, and patience to travel through the “becoming” so we can “be” the person we were meant to be.

Tai Goodwin can be reached at tai@taigoodwin.com or go to her website www.TaiGoodwin.com for more information on launching your part-time business and social networking.


Out of the Shadows, Onto the Stage by Caryn Sullivan

As a person who experienced paralysis first hand and was bound to a wheelchair, I became very intrigued by the television show “Push Girls” that premiered this year on the Sundance channel. The program revolves around four (sometimes five) young attractive women in different stages of their life that rely on their fancy wheelchairs to conduct as close to normal a life as they can. It is truly an inspirational program and one I can relate to. The Push Girls are on television, but what about those with disabilities that live among us. That is why I chose this article written by my friend, Caryn Sullivan, in her July 20, 2012 St. Paul Pioneer Press column to be featured this month.

Caryn writes…
When a child is born, she is swaddled and placed into loving arms. New life inspires dreams of years filled with opportunities and purpose. But when cognitive or physical limitations appear, a limiting label rattles the dreams and posits questions to which answers may be elusive.

Can a person with developmental disabilities live a purpose-filled life? What is in store for one who cannot speak clearly, if at all, or whose ability to reason or read is far below the norm?

In generations past, adults with disabilities had few options. Often living out of sight, little was expected and little was offered.

The world is changing for them.

As they come out of the shadows, there’s a growing movement to focus on abilities of people who are too often thought of in terms of what they cannot do.
At Partnership Resources, Inc. (PRI), adults are changing the paradigm and using the stage to do so. Diagnosed as developmentally disabled, they offer a humbling and insightful lesson about who they are, what they dream about and what they can accomplish.

PRI, a Minneapolis-based day treatment program, has been around for decades. Like many other such agencies, it provides a range of services for its hundreds of adult clients. It works with dozens of local organizations that employ those who are able to work.

PRI also instructs clients about cooking and wellness and offers yoga and music therapy. Its visual arts program, PARTnerships, provides clients an opportunity to develop their artistic abilities as well as to sell their artwork.

But PRI’s theater program has been in the spotlight lately.

Five years ago, a PRI client said she dreamed about appearing on stage. Some of her contemporaries shared her dream. So PRI instituted a theater program in conjunction with MacPhail Center for Music. An acting class evolved into full-scale stage productions of “Grease,” “High School Musical,” “The Wizard of Oz,” and “Willy Wonka.”

“Hairspray” was the 2011 production. Before work commenced, a fan and benefactor committed to funding a short documentary to chronicle the process of producing the show, beginning with casting and ending with staging. It includes interviews in which actors share what it means to be able to perform. It also includes snippets of them strutting their stuff.

In “Born for the Stage,” documentary director Matt Ehlig revealed how teamwork and ingenuity merged so actors with speech and vision challenges could be cast in meaningful roles in a musical alongside a colleague who uses a wheelchair. Cue cards were created for one actor, verbal prompts provided for another. Ehlig reported how, initially using CDs and scripts, staff and volunteers coached actors over the course of several months.

As they honed their skills, the group’s performances attracted more than friends and family. They’ve garnered media attention. “Born for the Stage” made its way onto YouTube.

It also received awards at the Lifetree Film Festival in Colorado and the Manhattan Film Festival. The latter selected “Born for the Stage” for the “Film Heals Award,” which honors filmmakers who use film to promote peace, justice, equality and humanity.

The documentary also received accolades from the professionals who brought the show to the stage and the big screen.

A random Google search of “Hairspray” led Marc Shaiman, co-creator of the Broadway show, to the documentary on YouTube. Shaiman, a Tony award-winner, contacted PRI to express his enthusiasm for a job well done. He said, “This film left me speechless and that’s hard to do.”

John Waters, producer and director of the original film, also saw the documentary. Last year, he met with PRI performers at the Walker Art Center in Minneapolis and said, “I’ve seen “Hairspray” done hundreds of times, but no group has captured its meaning like you have.”

So what can come of their efforts?

Allison, who worked part time at Target while performing a lead role in “Hairspray,” said, “I’m hoping that my family will learn that just because I have a disability doesn’t mean that I can’t do something. I believe in myself. I keep pushing myself.”

Zach has found his purpose in life. He plans to spread his joy by singing, dancing, acting and directing. After all, he asked, “How many people get to make a thousand people happy?”